Today, I am writing about a very serious disease that affects many countries. It is a condition from Allah, which we cannot completely eliminate but can only reduce. The disease is thalassemia. In this article, I will discuss a remarkable individual who is helping thalassemia patients in Turbat. His name is Sir Irshad Arif.
Who is Sir Irshad Arif?
Sir Irshad Arif is a kind, outgoing, open-minded, and generous person. While teaching at Syed Hashmi School in Turbat, he conceived the idea of establishing a thalassemia care centre where patients could easily access blood. His goal was to relieve patients from the worry of arranging blood. He organized blood camps with his students, and his idea proved successful. Today, he has achieved his goal and continues to support thalassemia patients.
Understanding Thalassemia
Thalassemia is a serious genetic disease passed from parents to children. It is a blood disorder in which the body cannot produce enough healthy haemoglobin, the protein that carries oxygen in the blood. There are two types: minor and major.
Thalassemia Minor
Individuals with thalassemia minor appear normal, healthy, and active. They face no serious problems but can pass the disease to their children.
Thalassemia Major
Thalassemia major is a severe condition. Patients require regular blood transfusions, and the disease typically begins in early childhood.
Symptoms and Diagnosis
Thalassemia is a genetic disease that can be transferred from parents to children, though not every child is affected. Symptoms include weakness, tiredness, pale skin, slow growth, shortness of breath, and an enlarged spleen. If these signs appear, a doctor should be consulted for a check-up.
Treatment and Prognosis
Treatment for thalassemia is not easy. With proper care, patients can survive for many years, but life expectancy varies. Some live up to 18 to 20 years, while others die earlier. The main treatment involves regular blood transfusions every few weeks.
Challenges Faced by Patients
Thalassemia patients lead difficult lives. They need regular medical care and often cannot attend school or mosque regularly. Strong family support is essential, and they cannot always live a normal life like others.
Preventive Measures
I strongly suggest that before marriage, individuals should have their blood tested for thalassemia. Marriage between cousins or close relatives increases the risk of the disease in children. Awareness is crucial because one mistake can affect an innocent child's life.
Appeal to Authorities and Public
I request the Prime Minister of Pakistan to support thalassemia patients by providing better facilities. Sir Irshad Arif needs more donations and resources to continue his work. I also appeal to the people of Turbat and nearby areas to donate blood and save lives.
